Ablation and my daughter - page 2

I am a little nervous, so if I ramble, please bear with me. My youngest daughter had her routine GYN check up and the physician heard an irregularity. She told him she had palpitaitons and was... Read More

  1. by   sirI
    Quote from carachel2
    The signs and symptoms you describe raise a red flag with me. I was diagnosed with a heart condition called "Peripartum Cardiomyopathy" soon after the birth of my daughter. PPCM is an enlargment of the left ventricle and reduced heart function (EF) that occurs in the last few months of pregnancy or in the first five months post-partum. Some women are VERY symptomatic and are in full blown congestive heart failure due to the decreased ejection fraction. Still others are mildly symptomatic and experience just fatigue and a little shortness of breath in the post-partum period. Because they are not extremely ill AND because PPCM often heals on it's own given enough time, these women are not diagnosed accurately.

    Even as a cardiac nurse who specialized in working with heart failure patients, I had never heard of this condition. Your daughters description of increased fatigue and symptoms after her delivery raise a red flag. Fortunately her Dr. has done an echocardiogram....what were the results of that test ?

    My ejection fraction was 25-30% and I was in mild congestive heart failure. It took about 6 months for my EF to come up completely, but fortunately I did experience a complete recovery. I did, however, experience recurring PSVT/AV nodal re-entry tachycardia and after receiving adenosine x 2 in an ambulance with my 3yr old daughter in my lap...I finally decided to have the EP study done and the resulting ablation. The procedure was not a big deal at all to me (keep in mind though that I've been a cardiac nurse for years, so in my twisted way I thought it was actually kind of interesting). My husband and I went to see a movie the next day and I was kept just overnight.

    So bottom line....ask the cardio what her EF is. Examine her symptoms in her last month of pregnancy. Any swelling ? Eclampsia ? You might look at our website for more information but do *not* let it freak you out. Survival rates for PPCM are WAY better than they were even 10 years ago thanks to the treatment with beta blockers and ACE inhibitors. Most of us are living wonderful productive mommy lives and loving every minute.

    www.amothersheart.com
    Thank you for looking at my post and responding.

    She never had any B/P problems and only very minimal edema during pregnancy. Weight gain was the problem. She only gained 5 pounds throughout the pregnancy.

    She does have an enlarged left ventricle with EF 45%. I am concerned about that, but, he (doc) has not indicated PPCM at all. This is so uncommon, but, I know it still is a possibility. She has a good electrical cariologist and another cardiology surgeon she is seeing. The runs of tachy and fatigue are worse, even in the past 36 hours. She will see him again in a.m.

    Thank you for sharing this. I will certainly follow with her phsicians regarding this.

    Again, thank you for your concern.

    Siri
  2. by   carachel2
    It sounds like strong consideration should be given to the diagnosis of PPCM but he is also sharing the same puzzle as my cardio who knew that my enlargement could have also been generated by the tachycardia. Kind of like trying to figure out which came first....the chicken or the egg.

    It will be of MUCH more concern when and if she considers future pregnancies. Keep us updated.
  3. by   sirI
    Quote from carachel2
    It sounds like strong consideration should be given to the diagnosis of PPCM but he is also sharing the same puzzle as my cardio who knew that my enlargement could have also been generated by the tachycardia. Kind of like trying to figure out which came first....the chicken or the egg.

    It will be of MUCH more concern when and if she considers future pregnancies. Keep us updated.
    Yes, I, too, believe this should be differentiated. I most definitely will be on top of this.

    Yep, chicken or egg......

    Thanks.................Siri

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