This is aweful! Our unit has these patients frequently, and to me it sounds as if she was completely mistreated from the beginning. Xeroform is a good dressing, but certainly not the cetaphil lotion alone, and probably with no tubbing or baths either. Pts survive with thei % of SJ or more ALL THE TIME. Pig skin, dressings, and appropriate care at a regional burn center accredited by the college of surgeons might have saved your patient. there are guidelines for which pts need to be seen at an accredited burn center, she falls in the category hands down.
im so sorry for this family.
SJS is treatable, and is no olnger as uncommon as we might like to think, also the drugs that can trigger this disorder may surprise you- PRILOSEC has had more than 4 reported cases, given more time that number will simply increase. I had a healthy young Nursing student with this problem from prilosec only a month ago. 60%, on a vent, pig skin, all kinds of stuff going on. It can happen to about anyone.
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